I'm coming home! Never posted from Sunday!

Well looks like they are happy with my recovery. I'm on my way home! Yay! I am feeling better, mommy can tell. I started throwing everything out if my bed.

Up and at 'em

There is no rest in this place. They've got me up and walking, even though I just want to sleep in bed. Mommy and daddy took me to the playroom. Daddy put dinosaurs in the barn. Silly daddy.

Great news!!!

The surgery is over and they were able to preserve both adrenal glands. He may still have issues for a couple of months with adrenal function, but they should get better with time. They were able to remove 90% of the tumor, which is great. The surgery was more difficult than the surgeon anticipated, but he is very happy with the outcome!

Good news

Surgery is about 1/2 done. The surgeon was able to preserve one adrenal gland and is now working in saving the other.

So far so good

So far so good. No details yet just that his is safely under and they are working on him.

I'm going in for surgery

The surgery is about to begin. They have ordered me to turn off all electronic devices and return my seat to it's full upright position. Oh no wait that's for an airplane. Yeah well anyway, I got the giggle juice and will soon be out cold. Because I will not have access to my phone I have authorized mommy and daddy to post updates on my behalf.

Thank you

Day of thanks #25. Today I am thankful for all of you, friends and family old and new. I have been totally blessed to have your support, prayers, kind thoughts and words that you have all given us during this difficult time. You have all renewed my faith in humanity and the good in people. I am touched that so many of you care and help in whatever way you can, even those of you who I haven't seen in almost 20 years. You are all amazing friends and for this I thank you all!

And the answer is...

So we finally met with the doctors down at chop today. And the answer is, I will need surgery to remove the rest of the tumors. Yes, it looks like there are 2 tumors each growing on one adrenal gland. The chemo did work to shrink them but not enough. The doctors are hopeful that they will be able to remove the tissue while keeping at least one of my adrenal glands but as you know with me, nothing is garenteed or routine. On Thursday I will go under the knife for a minimal 5 hour surgery.

A big day tomorrow

Tomorrow is another big day. I head back down to chop with mommy and daddy to meet with all of my doctors down there. They will go over my test results and talk with us about the next step. Wish me luck. 😷🍀

Platelet transfusion

Today I am back at morristown for a platelet transfusion. Hopefully I shouldn't be here for long. On the bright side, this should hopefully keep us out of the hospital for the holiday weekend.

And it all comes down to this...

Well, tomorrow is the day. I will have an MRI and an MIBG done to evaluate the size of my tumor. This will help the doctors determine what the next course of treatment will be. A miracle would be that the tumor shrunk a lot and I'm done. But the realistic best case scenario is that the tumor shrunk enough so that they can remove it with surgery and save one of my adrenal glands. Pray for me.