No oxygen!!

I made it through the whole night without oxygen. I'm definately feeling better all over. Not sure when my next round of chemo will be but I do have an appointment with my new oncologist on Thursday afternoon.

Happy Easter!

Yes I know Easter was last week but since I was in the hospital we celebrated it today. I can't even say that we decided to celebrate orthodox Easter because that was actually last week too. The Easter bunny gave me a big Easter bunny Mickey and a mini Easter bunny Mickey and Donald. Here are some pictures of me and my girls.

I'm home

They let me go home yesterday after mommy reassured the doctors that I still have oxygen and a pulse ox at home. I needed the oxygen to sleep last night but did not need it during a nap today. Let's see how I do tonight.

Rockin' pneumonia

I've got a case of rockin' pneumonia. I'm rocking out in here with the music therapist while I'm fighting pneumonia. I'm on 2 liters of oxygen right now. They think it's all viral which means there is no medicine they can give me to fix it, even though they are just in case. They are giving me breathing treatments every 2 hours and another round of high dose steroids. I just have to wait, rest, and let it run it's course.

Still in the hospital

Yes I am still in the hospital and it doesn't look like I will be home any time soon. I was supposed to go home today, have one night at home, and then head to Beth Israel for my chemo tomorrow. That has changed. I'm not exactly sure what the new plan is. All I know is that last night it got harder for me to breathe. I started breathing quickly, so mommy checked my oxygen levels and they were low. She called the nurse and then the drs came too and they put me in oxygen. I was doing better. I did have a tough time breathing yesterday but it got better. This time is not getting better so quickly. So now I am on oxygen and getting more respiratory treatments. I just want to go home. 😕🏡

I'm tired

What a long couple of days. I am so tired because all of these alarms keep going off and waking me up at night. What does a guy have to do to get some sleep in this joint?

I'm back

My home nurse took my temperature tonight and I was burning up. I had a fever of 102.7. This is very high for me especially with chemo. So off to the ER we went again. They did a chest x-ray that was fine. Then they tested me for the flu and RSV. Both negative. They can't figure out what is going on. Good news is my fever went down with Tylenol. They admitted me and I'm at St barnabus again. Looks like I'll be here for at least another 2 days.

Back in my own crib

I'm home!!! Just got discharged today around 6. I was so excited to see daddy, Julia, grandma and poppy. I was crawling all over getting into trouble, just like the good old days. Boy it feels good to be home and sleeping in my own bed. I mean crib.

Imprisoned for another day

Just when I thought I was free I started puking again. And now I'm stuck here for another day. Good news is I am feeling better, just not good enough to go home yet.

Back at Barnabus

Yesterday was a rough day. I had diareah all day and started puking again at night. Last night my nurse woke mommy up and told her I needed to go to the hospital. She got dressed and off we went. After a short time in the ER and being treated like a king they admitted me to the hospital. I'm back at St Barnabus where all of my friends are. So that's a good thing. I was really dehydrated and had a few infections brewing. They gave me a big dose of iv antibiodics and hooked me up with some iv fluids. I am feeling and looking much better now.

The sick house

As if all that I am fighting isn't enough now I am sick with something else. I went back to the emergency room yesterday with stomach problems. Mommy was afraid I was getting dehydrated. They tested me for c diff. We are waiting for the results. Mommy was sick yesterday and now daddy and Julia are sick today. 

:(

I'm coming home!

Me and mommy are on our way home after my first round of chemo. I was do excited to see the sunlight I bopped myself to sleep.

My visitors

Yesterday grandma and poppy came to visit with my girl, Julia. I was happy to see them but didn't really show it because I was so tired. I'm not really getting much sleep in this place. They keep coming in to check my vitals and all sorts of alarms are going off all day and night. It reminds me a lot of my NICU days, just sleep whenever you can. Well mommy was happy to see everyone too it was nice for her to get some company.

Chemo

Yesterday they admitted me to the hospital after implanting a port in my chest. It is a direct line that goes to into a vein where they can give me chemo and take blood without using an iv or pricking me. It was hard to do the first time because I have bad NICU veins. I had my first round of chemo Wednesday night and my second round just before bed. Last night and this morning was rough. I was puking a lot but the drs gave me medicine to make that stop. I did a lot better with my second dose.

I'm packing my bags!

Daddy and I had a fall out last night so I'm leaving him and Julia. I asked mommy to pack our bags and take me down to philly.

Truth is I need to go to chop again. We are leaving first thing in the morning. I need to have another surgery to have a port placed. After that they will be starting chemo for 3 days. I will be admitted and mommy will be staying with me. Daddy needs to hold down the fort back home. I will miss him and my girl, Julia.