Things are looking up!

On our way home my doctor called to let us know about the scan. Great news... The cancer is contained! Hopefully tomorrow we will hear about the rest of the results from the biopsy. Thank you all for your prayers. 

Ronald Mc Donald House

Last night we stayed at the Philadelphia Ronald Mc Donald House. I like that place. They welcomed me with a toy as soon as I got there. They even had a nice dinner for everyone. Too bad I don't eat because it looked good. 

MIBG

So now I'm having the most important test. It's called an MIBG. They injected me with radiation yesterday and now today I'm getting my body scanned. Hopefully they won't find any other tumors.

Done with my test.

I'm done with my test and waking up from anesthesia. Still no word on the results yet. I don't need any oxygen anymore. Hopefully I can go home soon.

Mixed news

So here is the most recent news. It has been confirmed that yes, my tumor is cancerous. It is in deed a neuroblastoma. And during the biopsy the dr actually got a piece of the lymph nodes so yes it is in my lymph nodes. Good news is my bone marrow test came back negative, so it hasn't spread that far. This week we will go back down to chop again for another 2-3 days of testing. These tests will tell where/if the cancer has spread anywhere else in my body and how my organs are functions to help the drs decide what type of chemo I will need. Wish me luck and keep me in your prayers.

Surgery

Surgery went well. I just have 4 small cuts. They were able to do it laparoscopically. Waiting for the oncologist to take my bone marrow. Still need to wait a few days to a week for the test results but the pathologists think it is a neuroblastoma. I can't wait to see mommy and daddy and give them hugs and kisses.

Waiting for my tests

I'm back at the hospital waiting for them to put me under for my tests. I should have known this was going to be a bad day. Things never go well for me when mommy wakes me up early and takes me out of the house in my pjs.

Thank god for my iPad and wifi.

A reason for a second opinion

I met with my doctors down in philly again yesterday. Their plan is to just go in do a biopsy on Wednesday instead of cutting out the tumor and an adrenal gland along with it. They are hoping to do it laparoscopically, which means I will just have a few cuts. If they need to the will have to make a bigger cut. This is much better news because it means I will only have to be in the hospital overnight if all goes well. And then I won't be away from my #1 girl, Julia for that long. I will miss her so. So after they find out what's going on they will figure out what to do next. If it's benine then they will just watch it but if it is malignant then I might need chemo to shrink it then surgery it remove the tumor. This is why you get a second opinion.

Wish me luck tomorrow. Love you all.

Happy st Patricks day!

I'm bopping out to Irish music on my way back to CHoP. Heading down to see the surgeon, anesthesiologist, oncologist and get bloodwork done for my surgery on Wednesday. Hopefully I'll know more about what's going on in a few hours.

While I was sleeping

The doctor down at CHoP called last night after I went to bed. Mommy took the call. They finally got the MRI results and after looking at the pictures it looks a little more involved than originally thought. They are not sure if it spread to my other adrenal gland so they are going to do a biopsy first before they take out my gland and the tumor. I go back down on Monday to meet with my surgeon.

NJ surgeon

Today we went to see the surgeon in NJ who would be doing my surgery if I go to Beth Israel. It sounds like he is the cancer surgeon to go to in NJ. Just not sure if I want to do it here. Sounds like I definately need the surgery. It's just a question of where and when. Good news is all doctors are surprised that I have no symptoms!!

A waste of time

On my way back from chop with no more answers then i went down with. The disks that we picked up in the way diwn from Beth Israel were not enough. They are still waiting for all of the images. Hopefully well know more tomorrow.

And the hospital tour continues.

Good morning all. As many of you may have heard i have been diagnosed with a neuroblastoma by an oncologist at Beth Israel. They want me to have surgery to remove the tumor and my adrenal gland. I am taking a trip down to phillie today to get a second opinion from the specialists at CHoP. 

My hospital tour continues. I have wrapped up a the North Jersey tour. For those who are counting this will be hospital #5 on the tour. Watch out i may be making a stop at a local hospital near you.